Tuesday, July 27, 2010

A trip to Holland...

March was Developmental Disabilities Awareness Month.  I started writing this post in April.  Overwhelmed with emotion, I stopped.  Three months later, I'm ready to finish.

If you've been reading my blog, then you know our path to parenthood has been filled with grief.  Our first pregnancy ended in loss and our second pregnancy....





took us to Holland


Twelve weeks into our pregnancy, the technician noticed an abnormality in the ultrasound of our unborn child.  She asked me to get dressed, the doctor wanted to see us in her office. 

Entering the Doctor's office, I recognized that look of disappointment on her face from the last time she had given us bad news.  Sure enough, the baby's brain was NOT developing correctly.  After double checking her medical books, the doctor suspected our baby had Agenesis of the Corpus Callosum (ACC). 

We were referred to the Prenatal specialists at The Ohio State University Medical Center. 

Following an amniocentesis and a fetal MRI, the only thing that could be confirmed is that we were having a boy and there was no genetic abnormalities. {Praise God for those victories!}

The next few weeks were spent crying and worrying of what we become of our unborn child affectionately called peanut.  {How ironic is it that Max is allergic to peanuts?} After fussing God out a few times and asking him why me, I became angry with him.  {I call these moments my season of GETHSEMANE}

Whether it was God or not, one day I realized that this child is going to be WHO God created him to be.  I can't spend the rest of my life worrying about his abilities and disabilities.   Yes, there will be days {like today} that I'm saddened by his limitations but there will be MORE days that I rejoice in the beauty of who he is.

Following another mri when Max was four months old, it was confirmed that he had ACC.  We got the news while we were vacationing in South Carolina.  At that very moment we were faced with the choice, to sit around and feel sorry for ourselves or keep going.   

Max turned three in May.  Despite his best efforts, he does not walk.  In April, we added another specialist to his medical repertoire.  A doctor specializing in physical medicine.  His most recent diagnosis is Cerebral Palsy. 

But like everytime else, we'll just keep on going...

Sincerely, Lisa

6 comments:

  1. "You will experience terrible failure and crushing conflict on the road that leads to where I'm taking you, but it is the right road even when it feels like it's killing you." - Dr.Larry Crabb, "From God to you...."

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  2. Lisa,
    What a joy to find your post this morning!
    I'm so sorry that this part of your life has been laced with so many valleys, I pray for you a mountain top!

    How is school going?
    Dee Dee

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  3. I am so glad you are back blogging (even if just for today!). Oh how I have missed you these many weeks. You have been heavy on my heart.

    I love you.

    XOXO

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  4. sending you love and hugs. you're an amazing woman!

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  5. Thanks y'all! Sometimes I just feel down and need to express myself. Life is good and I am truly blessed to have the thoughts and prayers of so many:) Lisa

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  6. I have a son with pervasive developmental delays as well. It's such a tough long journey with very few joyful moments. Big hugs. I loved your post and could identify with your grief. Hope all is well. Danielle

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